mid2014

Not the right ward

This is the third incarnation of my RTC3 blog which started here, but for the moment is taking on a new life recording my darling Janet's recovery from an ischaemic stroke, the result of an unusually difficult TAVI (Trans-catheter Aortic Valve Implantation). The entry here gives background information.

* * * * *

The main trouble with ward Seven West is that it's not the right ward for the help Janet needs. Its speciality according to the hospital website is supposed to be gastroenterology, but the bay she's in gives the impression of being a dumping-ground for patients who can't be found a bed elsewhere in the hospital. She was supposed to be seen by a therapist and a neurologist today, but there was no sign of the neurologist and I had to plead for a therapist to come and see her. Also she was still in her nightdress when I arrived, since no-one had bothered to make sure she got herself dressed. (At least that was something I managed to achieve.) Interestingly (alarmingly!?), whereas when she was at Clayponds she was always saying how kind the staff were, here she was saying how kind some of the other patients had been (particularly a young woman in the next bed who had epilepsy), but didn't seem too taken with the staff.

The brief visit from the therapist was apparently the only therapy she'd had that day (and of course there hadn't been any over the weekend), which just gave her all the more time to brood over the ward transfer that had been handled so badly on Saturday evening - or was it actually in the small hours of Sunday morning? Sadly she is still fixated on this, and it seems almost impossible to shake her off it. I did persuade her to read for a short while, but she couldn't concentrate and gave up after a few sentences. (Fortunately it wasn't quite so dark today, since it will apparently take weeks for the light above her bed to be fixed, and the only solution would be for her to change beds to where there is a working light - not that there are many of those in her current bay!)

The therapist told me that Janet needs to have a "stairs assessment" before she's discharged, but that that needs two therapists. I'm hoping that they'll manage to accomplish that tomorrow morning, but unfortunately the relevant therapists are mostly on the ninth floor where the stroke units are. Ward Nine West is the Neurorehabilitation Unit, which is presumably where the neurologist will eventually come from, once one of them can be persuaded to make the journey down two floors. It will be interesting to see what (if anything) they can discover, and what (if anything) they can do to improve matters. It may be my imagination, but I have an uneasy feeling that Janet's visual perception has worsened somewhat since the seizure. And I still find her flights of fancy extremely worrying. Nevertheless, I suspect getting her home again as soon as possible is likely to be the best course of action.
mid2014

Sunday, bloody Sunday

This is the third incarnation of my RTC3 blog which started here, but for the moment is taking on a new life recording my darling Janet's recovery from an ischaemic stroke, the result of an unusually difficult TAVI (Trans-catheter Aortic Valve Implantation). The entry here gives background information.

* * * * *

I received a phone call from Charing X late this morning saying that Janet was very agitated and wanted to know where her glasses were. Unfortunately I'd been so tired yesterday (after a very short night's rest!) that it wasn't until I returned home from my visit that I spotted that I hadn't packed them in the case of her things (clothes, footwear, toiletries, etc) that I'd taken with me. Anyway I'd found them once I'd returned home, and had put them (along with a few other omissions) in my bag straight away ready to take them in with me today.

When I arrived at the Acute Assessment Unit, I found that Janet had been transferred to ward Seven West the previous evening - presumably to make space in the AAU for someone from A&E - and it turned out that it was the way the transfer was handled that was almost certainly what was really behind her agitation. It's difficult to get an accurate picture of what really happened, but it sounds as if she may have been left in a corridor in the dark for a period of time. In any case it was never properly explained to her what was going on, and she'd spent a very bad night on her new ward.

She was asleep when I arrived (in the early afternoon) and perhaps I should have let her sleep on. (But for how long?) Anyway when I woke her, her mind was very much exercised with how awful the transfer had been, and how awful the seizure had been (or rather how awful she'd felt in the period leading up to it), and I couldn't really manage to shake her off either of them. I thought I'd finally managed it when she agreed to read some more of the Katherine Mansfield short story we were in the middle of (she reads aloud from a paperback, and I follow the text on my tablet so that I can help her when she makes a mistake or is stumped by a difficult turn of phrase). However, we then found that there was no light above her bed and it was too dark to read without one - and of course there are no hospital electricians available on Sundays. (Deep Sigh!)

Ah well. Tomorrow is another day. And, with luck, therapists and electricians should both reappear.

Postscript
To finish on a couple of slightly more positive notes: Janet is walking - rather less confidently than before, but that could be at least partly because she is in an unfamiliar environment; and her right-hand grip seemed quite firm when I tested it.
mid2014

Waiting for the therapists to give their verdict

This is the third incarnation of my RTC3 blog which started here, but for the moment is taking on a new life recording my darling Janet's recovery from an ischaemic stroke, the result of an unusually difficult TAVI (Trans-catheter Aortic Valve Implantation). The entry here gives background information.

* * * * *

Janet is currently in the Acute Assessment Unit at Charing X Hospital, waiting for one or more therapists to give their verdict on how she is - which won't happen until Monday since therapists don't work at weekends. As far as I can tell, she's unchanged mentally, but physically her right side (which was more affected by the seizure than the left) seems weaker than before, and I suspect she may be finding walking more difficult or perhaps just more scary, though I haven't actually seen her walking since the seizure.

Time will tell, but at the moment I'm cautiously optimistic that she'll be home again before too long.
mid2014

Home from Clayponds - and then back to Charing Cross again

This is the third incarnation of my RTC3 blog which started here, but for the moment is taking on a new life recording my darling Janet's recovery from an ischaemic stroke, the result of an unusually difficult TAVI (Trans-catheter Aortic Valve Implantation). The entry here gives background information.

* * * * *

The reasons aren't entirely clear, but after having some supper, Janet felt very tired, fell (her legs just seemed to buckle under her while she was walking), couldn't get up again (despite my best efforts to help her), and then had a seizure. At least things could have been worse: the ambulance crew thought she'd had another stroke, but the doctors at Charing X Hospital reckoned she'd had a seizure instead (apparently seizures can happen as the result of stroke), and this diagnosis appears to have been confirmed by a CT Head. Anyway they're keeping her in for a couple of days for further investigations, and she's been assigned to an Acute Medical Unit rather than an Acute Stroke Unit.
  • Current Mood
    tired and depressed
mid2014

Another home visit

This is the third incarnation of my RTC3 blog which started here, but for the moment is taking on a new life recording my darling Janet's recovery from an ischaemic stroke, the result of an unusually difficult TAVI (Trans-catheter Aortic Valve Implantation). The entry here gives background information.

* * * * *

In anticipation of Janet's being discharged from Clayponds and returning home this coming Friday (20 September), she had another home visit this morning. Although this wasn't an unqualified success, it certainly went a lot better than her previous home visit, and (barring some last-minute hitch) she will be returning home on Friday. I'm expecting a rather bumpy ride, at least initially, but hope things won't take too long to settle down.

My aim is for Janet to return to something like her old routine, with regular weekly trips to her hairdresser (A Cut Above), to Waitrose and Marks & Spencer, to see Eva (our next-door neighbour since 1980 or thereabouts) on Monday afternoon, and to the Ivy Café on Wednesday afternoon, as well as outings with old friends.

I intend to write a blog entry every Sunday, but on other days only when there is some noteworthy to record. And I shan't be using this blog as an "engagement diary", but am hoping that Janet will be able to look after her own engagements. So if you want to arrange some activity with her, please just phone her. (I suspect there's going to need to be some way of ensuring that engagements made over the phone are properly recorded, so I've ordered her a diary with a page for each day, and would ask you, whenever you make an engagement, to remind her to write it down in the diary. I will check the diary at the end of each day, and will contact you - either by telephone or by e-mail - to confirm the engagement. If you don't receive this "handshake" within a couple of days, you should assume that the engagement hasn't been recorded, and should therefore try again.)
mid2014

Visiting schedule as at end Monday, 16 September

This is the third incarnation of my RTC3 blog which started here, but for the moment is taking on a new life recording my darling Janet's recovery from an ischaemic stroke, the result of an unusually difficult TAVI (Trans-catheter Aortic Valve Implantation). The entry here gives background information.
* * * * *

If you'd like to visit Janet in Clayponds, I'm sure it would be very beneficial to her, and she'd be delighted to see you, even if she may not be sure exactly who you are. I shall be going every day, but for the present I suggest limiting visiting to one other person per day as she currently seems to tire quite quickly - though if Janet often sees you in a pair, then it would perhaps be a good idea to visit in a pair. This list shows the days which have been spoken for so far:
Tuesday, 17 September
Wednesday, 18 September: Rosemary J
Thursday, 19 September: Romy H
Friday, 20 September (provisional date for Janet's return home)
If you'd like to visit, please let me know either by commenting below (if you subscribe to LiveJournal, please remember to either sign in or include your name in the comment) or by phone or e-mail. Janet is on Rosemary Ward (Bay A) where visiting hours are from 13:30 to 17:30 and from 18:30 to 19:30.

Please note that your visit may be interrupted by therapy. And if you're doing things side by side, such as looking at pictures together, it would apparently help if you would sit on her right (see 2nd paragraph here for an explanation).

Please note also that there are currently road works in place in and around South Ealing Road. As at 6 August: Occupation Lane is open again; if you're travelling by 65 bus heading south, you'll find that the Chandos Avenue stop is now out of action but the Darwin Road stop is back in operation again; while if you're heading north, the Carlyle Road stop is back in operation again but the Popes Lane stop is now out of action.
mid2014

More ups and downs

This is the third incarnation of my RTC3 blog which started here, but for the moment is taking on a new life recording my darling Janet's recovery from an ischaemic stroke, the result of an unusually difficult TAVI (Trans-catheter Aortic Valve Implantation). The entry here gives background information.
* * * * *

I haven't written anything to this blog over the past week, at least partly because although Janet continues to make progress, every time I report that she's had a good day, the next day almost always seems much worse. Anyway she's working on her reading and writing, and as well as reading a chunk of a Katherine Mansfield short story with me each day, is now well over half-way through a Donna Leon novel (in the Commissario Brunetti series) that her friend Sandy had kindly brought in for her. And she's still scheduled to return home this coming Friday (20 September), with domiciliary visits from therapists for an unspecified time thereafter.

* * * * *

If you'd like to visit Janet in Clayponds, I'm sure it would be very beneficial to her, and she'd be delighted to see you, even if she may not be sure exactly who you are. I shall be going every day, but for the present I suggest limiting visiting to one other person per day as she currently seems to tire quite quickly - though if Janet often sees you in a pair, then it would perhaps be a good idea to visit in a pair. This list shows the days which have been spoken for so far:
Monday, 16 September: Judy & Carol
Tuesday, 17 September
Wednesday, 18 September: Rosemary J
Thursday, 19 September
Friday, 20 September (provisional date for Janet's return home)
If you'd like to visit, please let me know either by commenting below (if you subscribe to LiveJournal, please remember to either sign in or include your name in the comment) or by phone or e-mail. Janet is on Rosemary Ward (Bay A) where visiting hours are from 13:30 to 17:30 and from 18:30 to 19:30.

Please note that your visit may be interrupted by therapy. And if you're doing things side by side, such as looking at pictures together, it would apparently help if you would sit on her right (see 2nd paragraph here for an explanation).

Please note also that there are currently road works in place in and around South Ealing Road. As at 6 August: Occupation Lane is open again; if you're travelling by 65 bus heading south, you'll find that the Chandos Avenue stop is now out of action but the Darwin Road stop is back in operation again; while if you're heading north, the Carlyle Road stop is back in operation again but the Popes Lane stop is now out of action.
mid2014

Visiting schedule as at midday, Saturday, 14 September

This is the third incarnation of my RTC3 blog which started here, but for the moment is taking on a new life recording my darling Janet's recovery from an ischaemic stroke, the result of an unusually difficult TAVI (Trans-catheter Aortic Valve Implantation). The entry here gives background information.
* * * * *

If you'd like to visit Janet in Clayponds, I'm sure it would be very beneficial to her, and she'd be delighted to see you, even if she may not be sure exactly who you are. I shall be going every day, but for the present I suggest limiting visiting to one other person per day as she currently seems to tire quite quickly - though if Janet often sees you in a pair, then it would perhaps be a good idea to visit in a pair. This list shows the days which have been spoken for so far:
Saturday, 14 September: Kathy P
Sunday, 15 September
Monday, 16 September: Judy & Carol
Tuesday, 17 September
Wednesday, 18 September: Rosemary J
Thursday, 19 September
Friday, 20 September (provisional date for Janet's return home)
If you'd like to visit, please let me know either by commenting below (if you subscribe to LiveJournal, please remember to either sign in or include your name in the comment) or by phone or e-mail. Janet is on Rosemary Ward (Bay A) where visiting hours are from 13:30 to 17:30 and from 18:30 to 19:30.

Please note that your visit may be interrupted by therapy. And if you're doing things side by side, such as looking at pictures together, it would apparently help if you would sit on her right (see 2nd paragraph here for an explanation).

Please note also that there are currently road works in place in and around South Ealing Road. As at 6 August: Occupation Lane is open again; if you're travelling by 65 bus heading south, you'll find that the Chandos Avenue stop is now out of action but the Darwin Road stop is back in operation again; while if you're heading north, the Carlyle Road stop is back in operation again but the Popes Lane stop is now out of action.
mid2014

Provisional date for returning home put back a week

This is the third incarnation of my RTC3 blog which started here, but for the moment is taking on a new life recording my darling Janet's recovery from an ischaemic stroke, the result of an unusually difficult TAVI (Trans-catheter Aortic Valve Implantation). The entry here gives background information.
* * * * *

I spoke to one of the therapists today, and she told me the current thinking is that Janet would benefit from an additional week's therapy at Clayponds, thus pushing the provisional date for her return home back to Friday, 20 September.

* * * * *

If you'd like to visit Janet in Clayponds, I'm sure it would be very beneficial to her, and she'd be delighted to see you, even if she may not be sure exactly who you are. I shall be going every day, but for the present I suggest limiting visiting to one other person per day as she currently seems to tire quite quickly - though if Janet often sees you in a pair, then it would perhaps be a good idea to visit in a pair. This list shows the days which have been spoken for so far:
Saturday, 7 September: Kathy P
Sunday, 8 September: Gillian H
Monday, 9 September: Fiona D
Tuesday, 10 September: Janet Ba
Wednesday, 11 September: Romy H
Thursday, 12 September
Friday, 13 September
Saturday, 14 September
Sunday, 15 September
Monday, 16 September
Tuesday, 17 September
Wednesday, 18 September
Thursday, 19 September
Friday, 20 September (new provisional date for Janet's return home)
If you'd like to visit, please let me know either by commenting below (if you subscribe to LiveJournal, please remember to either sign in or include your name in the comment) or by phone or e-mail. Janet is on Rosemary Ward (Bay A) where visiting hours are from 13:30 to 17:30 and from 18:30 to 19:30.

Please note that your visit may be interrupted by therapy. And if you're doing things side by side, such as looking at pictures together, it would apparently help if you would sit on her right (see 2nd paragraph here for an explanation).

Please note also that there are currently road works in place in and around South Ealing Road. As at 6 August: Occupation Lane is open again; if you're travelling by 65 bus heading south, you'll find that the Chandos Avenue stop is now out of action but the Darwin Road stop is back in operation again; while if you're heading north, the Carlyle Road stop is back in operation again but the Popes Lane stop is now out of action.
mid2014

Visiting schedule as at end of Thursday, 5 September

This is the third incarnation of my RTC3 blog which started here, but for the moment is taking on a new life recording my darling Janet's recovery from an ischaemic stroke, the result of an unusually difficult TAVI (Trans-catheter Aortic Valve Implantation). The entry here gives background information.
* * * * *

If you'd like to visit Janet in Clayponds, I'm sure it would be very beneficial to her, and she'd be delighted to see you, even if she may not be sure exactly who you are. I shall be going every day, but for the present I suggest limiting visiting to one other person per day as she currently seems to tire quite quickly - though if Janet often sees you in a pair, then it would perhaps be a good idea to visit in a pair. This list shows the days which have been spoken for so far:
Friday, 6 September: Carol & Judy
Saturday, 7 September: Kathy P
Sunday, 8 September: Gillian H
Monday, 9 September: Fiona D
Tuesday, 10 September: Janet Ba
Wednesday, 11 September: Romy H
Thursday, 12 September
Friday, 13 September (provisional date for Janet's return home)
If you'd like to visit, please let me know either by commenting below (if you subscribe to LiveJournal, please remember to either sign in or include your name in the comment) or by phone or e-mail. Janet is on Rosemary Ward (Bay A) where visiting hours are from 13:30 to 17:30 and from 18:30 to 19:30.

Please note that your visit may be interrupted by therapy. And if you're doing things side by side, such as looking at pictures together, it would apparently help if you would sit on her right (see 2nd paragraph here for an explanation).

Please note also that there are currently road works in place in and around South Ealing Road. As at 6 August: Occupation Lane is open again; if you're travelling by 65 bus heading south, you'll find that the Chandos Avenue stop is now out of action but the Darwin Road stop is back in operation again; while if you're heading north, the Carlyle Road stop is back in operation again but the Popes Lane stop is now out of action.